It Happened Again

Two weeks to the day from the first seizure, he had another--around the same time of night, with the same nurse.  This time she called me downstairs in time for me to see the end of it--as he was coming out of the seizure.  When I first arrived at his bedside, he was completely unresponsive and still twitching.  He appeared to be semi-conscious through this one, but unable to stop.  It was heartbreaking, and very scary.  I turned on the bright overhead light, and even shined a flashlight straight into his good eye.  No reaction.  When he pulled out of the seizure, the first thing he did was grab onto his ballard and run it along the rails of his crib a couple of times, then throw his arm across his eyes.  

He pulled out of it before we needed to use the rescue medication, and this time his oxygen saturation didn't drop too much, it stayed in the low 90's.

Two seizures two weeks apart, right around the same time, both caught by the same nurse?  Just seems very odd.  It begs the question, what's going on?  Kai had a fairly relaxed day that Saturday as we watched General Conference.  I cannot recall anything out of the ordinary happening that day in regards to him.

Is it the nurse?  For the life of me, I cannot think of anything she would be doing (recall that I have an infant and I am frequently up throughout the night; I keep tabs on what the nurse is doing, it is how I have caught nurses napping), and every time I check in, everything seems normal. 

The scarier question is has he been having seizures that we have been missing?  Trust me, if you didn't know what you were looking at, you could completely miss the seizure.  It could easily be dismissed as twitching or playing in his sleep.  I have seen him "play" in his sleep, and this is something altogether different.  The continuous repetitive movement is the key; that and his non-responsiveness.

He had an EEG last week (post on that to follow), and we haven't heard the results yet, but we are hoping for answers.

The nurse also caught the latest seizure on video.  She held his arm down to show so that we can see it effecting his arm, his eye, and even his mouth.