Saturday, March 28, 2015

Exploration

 It's almost night and day difference in Kai since his surgery.  He still has his fussy days, but overall, he is back to being a happy go-lucky boy.  He is still ambivalent about the puppy, but he's becoming more interested in her.  He even reached out to touch her--which is a big deal.  He stopped sucking on his fingers and stretched out his arm to her, and kept it there long enough for me to get a couple pictures. 

He is very particular with the things he will and won't touch.  Almost everything is on his "no touch" list, but he does enjoy reaching out and touching my tablet briefly--just enough to mess with my games.  ;-)

I love the awareness that he is showing with his immediate environment.  I also love that he is beginning to explore.  It's small things like he will put his hand on mine for several seconds.  If I try to hold his hand, he will pull away, but if I allow him to rest his hand on mine then he will keep it there.  The first time it happened I thought it was a fluke.  The next time I realized it wasn't and it brought tears to my eyes.  My little boy was reaching out--to me.

Small things that make huge differences.

Wednesday, March 18, 2015

Life Rolls On

One of these days my life will slow down, but right now life is rolling forward at what seems breakneck speed.  Three kids and a puppy.  Oh my.  I have tons to post, and plan on getting all caught up...sometime soon.  In the meantime, if there is a dearth of posts, just know I haven't forgotten, I'm just busy with my precious little ones. 

Monday, March 9, 2015

Good News

Today we had a visit with Kai's neurologist.  I was full of apprehension about the visit because it had seemed like Kai's seizures were increasing, which would mean getting him started on an anti-seizure medication.

I described the symptoms I had been seeing with the doc, and with our combined knowledge, we were able to (mostly) rule out the symptoms as seizures!  Whoohooo! 

Kai has had a couple more valid seizures, however, and one of his nurses reported a possible seizure as recently as last week, so he's not out of the woods completely. For right now, since they don't seem to be occurring more frequently or increasing in duration, we are holding off on the medication. 

Scary stuff, I tell you, but overall, good news!

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