Wednesday, June 27, 2012

Oh the Contraptions We Use!

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This isKai's new "stander."  It allows him to bear weight on his legs while supporting his body.  I got a picture as the OT was adjusting it to Kai's specifications.  He didn't like it at first and got really upset, but once all was said and done, he calmed down and was okay with it.  The only problem is that it doesn't have any side head support, so his head flops over when he moves it.  He gets to stand in it for five minutes in the morning and the evening, to start with, then we will gradually increase the time.  

Kai loves to use his legs!  He is constantly pushing on anything he can, so this is a great thing for him.  He would be a total walker by now if he could just get his head support down.  It would be so fun to see this little guy cruising around, but it would definitely pose some unique challenges with all his cords!  :-)

Monday, June 25, 2012

Arigatou Gozaimashita

We have been busy bees over here and there are some posts that I have been meaning to do!  This first one is a special Thank You to Kimie for the wonderful birthday presents for Zuri and Kai.  Since she lives in Japan, she didn't get to see the reactions but I hope these pictures help!
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Kai got a cute little kimono outfit!  It fits perfectly!

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Zuri got a musical/dancing Hello Kitty hat.  She loves it and calls it her kitty hat!

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Wednesday, June 20, 2012

Playing with Daddy


This little guy loves playing with his daddy.  J can get him laughing so hard!  It is funny because when he laughs, it is mostly silent, but his ventilator goes crazy with beeping.  I was able to capture a few precious moments.

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Sunday, June 17, 2012

What a Difference!

DSC01181 (1)What a difference a haircut makes!  Kai got his fifth haircut last week and I love the change!  I waited a little too long to get his hair cut, but it was fun to see his curls.  His nurses also loved the curls and kept telling me to leave it long....but, I wanted my little boy to look like a boy.  :-)  I love the new haircut, and it completely transforms Kai into a different look.
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Our neighbor has given Kai his last two haircuts and has done a fabulous job.  I forgot to get pictures the last time so I made sure not to forget this round!  The last time Kai  was quite calm throughout most of it, but this time he wasn't liking the haircut one bit.  Poor guy, but the results are worth it.  He had so much hair cut off that it filled the entire dust pan!  It was incredible!
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Saturday, June 2, 2012

A Little Bit of Sound

The other day Kai was cooing for me.  I am always amazed and just love to listen whenever he talks.  It is still rare and usually short-lived, but I was able to get a good couple minutes on video.  It is so fun to hear his voice! 

--Remember, we don't normally hear anything from him other than the sound of his machines or him blowing raspberries.  Even when he cries, it is silent, so to have him coo is a big deal for us.  He has to work at talking, and even then, we don't even know if he can hear himself!

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