Last night the nurse who came was the first nurse Kai had when he came home from the NICU at Primary Children's Hospital. She hadn't seen him since that first night and she was completely amazed by how big Kai has become and how much he moves now. Since I am with Kai every day, I don't see the changes as much as others, and I often forget how small and hypotonic he was when we first brought him home.
Then today I ran across this video from when Kai was in the NICU. I had meant to post it way back then, but kept forgetting. It was about a week before we were able to bring him home, while we were doing the trach mask trials.
I remember the little bit of movement that he was doing while I held him was so encouraging for us, because he would normally lie so completely still while on the ventilator. With the trach mask he had more freedom to move and he took advantage of it. I still remember how he showed his stubborn personality even then, by continually kicking out his foot from the swaddle they had him in to keep him warm. He has come a long way in the few months he has been home. We brought him home at less than five pounds. We are so grateful for this little boy in our lives.
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