Thursday, August 11, 2011

The Good, the Bad, and the Tantrums

07282011_216

We have had a busy couple of weeks!  We are successfully moved into our new place.  The move wasn't really that far, just on the other side of center street but the upgrade is undeniable.  I think my favorite thing about our new place is the jetted tubs.  Oh, so nice!

Everyone has been really nice and we are loving our new ward.  There are several families who have children with special needs and it is really great coming into a new place and not being such complete oddballs.  Our neighbors all have children right around Zuri's age and she has had fun interacting with them.

Zuri is not handling the move as well as she normally does.  We have never had any issues with her in any of our moves, but this time she isn't adjusting as well.  She has been more on edge and has had more tantrums than normal.  She is also having a hard time going to bed at night.  She is sleeping through the night though.  I am not sure what is going on with her--could be all the changes that have happened in the last few months.  We are trying to give her individual attention and include her in the things we do with Kai.  She loves to touch his head and hold his hands.  She will give us updates on how he is doing.  It is really fun to watch.

We received some news that is not so good today.  Yesterday, J spent the day with Kai up at Primary Childrens for follow-up appointments.  They took Kai's blood gast to see how his carbon dioxide levels are and a chest x-ray to view his lungs.  His carbon dioxide levels were a little on the high side and there is evidence of a small amount of lung collapse.  What it means is that his body is not taking in the oxygen as it should and if his levels continue to be high then he will have to go back on a ventilator.  Kai also had his trach size increased to accommodate his increased size.  We are hoping that with the increased trach that he will be able to breathe better and decrease his carbon dioxide levels and keep him off the ventilator, especially since he has been thriving in every other way since having come home.

News that is good is that he is now 7 lbs 9 oz and we had a meeting with Kids on the Move today (it is an early intervention program).  In the evaluation they said that as of right now, Kai is pretty much on track developmentally for his adjusted age (adjusted age is where he would be if he were born on his due date--it is something they do with all preemies).  :-)

No comments:

Post a Comment

Total Pageviews