Not Alone

A few weeks ago I was contacted through email from a mother of a son who has Marshall-Smith Syndrome.  I was elated--finally, a connection with others!  She told me that she is part of a facebook page and there are 11 families represented in the group who live in the United States, and 28 worldwide.  She said that she found my page through the special needs spotlight on This Little Miggy Stayed Home.  More blessings from the spotlight!

I was invited to join the facebook page and now I am connected with the other families who have children with this syndrome.  It is so incredibly liberating to finally "meet" others who have been through some of what we have been through.  Although I haven't had much time to really get to know these families, I have been able to look through the pictures and posts.  It is amazing how similar the children look to one another!  They could all be siblings.  As with many syndromes, there are varying levels of severity.  There are some who are trached, some who are walking, some who aren't, but the overlapping sweetness of the children is all the same.  The other families have been so welcoming and willing to reach out to us.  The only way that I can describe it is as though they have become an extended family.  We have been united through a common bond with these special children.  There is just something about knowing that we are not alone that just helps to bolster our spirits and give us courage (and hope) for what lies ahead.